Качество медицинских услуг при расстройствах аутистического спектра в оценках потребителей

Полный текст:   Только для подписчиков

Рекомендуемое оформление библиографической ссылки:

Пискунов М.В., Скороходов И.В., Варламов А.А., Шпицберг И.Л. Качество медицинских услуг при расстройствах аутистического спектра в оценках потребителей // Российский психиатрический журнал. 2018. №3. С. 10-15.

Аннотация

В оригинальном исследовании с целью изучения оценок качества медицинских услуг для разработки алгоритма медицинского сопровождения детей с расстройствами аутистического спектра проведён опрос их родителей. В исследовании приняли участие 106 респондентов. Установлено, что потребители чаще отмечают неудовлетворенность получаемыми медицинскими услугами, навыками работы медицинского персонала с такими больными. Неудовлетворённость получаемыми услугами не зависела от того, в какие лечебно-профилактические учреждения (государственные или частные) обращались респонденты. Больше половины респондентов считают, что медицинским специалистам следует пройти дополнительное обучение по развитию навыков взаимодействия с детьми с расстройствами аутистического спектра.

Ключевые слова расстройства аутистического спектра; РАС; качество; медицина; услуга; оценка

Литература

1. Piskorz-Ogórek K, Ogórek S, Cieślińska A, Kostyra E. Autism in Poland in comparison to other countries. Polish Ann Med [Internet]. 2015 Jun;22(1):35–40. DOI 10.1016/j.poamed.2015.03.010 Available from: http://linkinghub.elsevier.com/retrieve/pii/S1230801315000119. 2. Kim YS, Leventhal BL, Koh Y-J, Fombonne E, Laska E, Lim E-C, et al. Prevalence of Autism Spectrum Disorders in a Total Population Sample. Am J Psychiatry [Internet]. American Psychiatric Publishing Arlington, VA; 2011 Sep 1;168(9):904–12. doi 10.1176/appi.ajp.2011.10101532 Available from: http://psychiatryonline.org/doi/abs/10.1176/appi. ajp.2011.10101532. 3. Bashina VM Autism v detstve. Moscow, Medicina; 1999; 238 p. Russian. 4. Hansen SN, Schendel DE, Parner ET. Explaining the increase in the prevalence of autism spectrum disorders: the proportion attributable to changes in reporting practices. JAMA pediatrics. 2015;169(1):56–62. 5. Gray DE. Perceptions of stigma: the parents of autistic children. Sociology of Health & Illness. 1993;15(1):102-20. doi 10.1111/1467-9566.ep11343802. 6. Filippova NV, Barylnik YuB. [Epidemiology of Autism: Modern View of The Disorder]. Socialnaya i Klinicheskaya Psihiatriya. 2014;(3):96–101. 7. American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders / American Psychiatric Association. 2013; 991 p. 8. Tsai W-Ch, Kung P-T, Chiang H-H, Chang W-Ch. Changes and factors associated with dentists’ willingness to treat patients with severe disabilities. Health Policy. 2007;(83):363–74. 9. Shpitzberg IL [The treatment of sensory systems developmental disorders in children with autism spectrum disorders]. Autism i narusheniya razvitiya [Autism and Developmental Disorders]. 2013;(2):33–45. Russian. 10. Zink AG, Diniz MB, Rodrigues dos Santos MTB, Guaré RO. Use of a Picture Exchange Communication System for preventive procedures in individuals with autism spectrum disorder: pilot study. Spec Care Dent. 2016;36(5):254–9. 11. Rogers K, Zeni MB. Systematic review of medical home models to promote transitions to primary adult health care for adolescents living with autism spectrum disorder. Worldviews on Evidence-Based Nursing. 2015;12(2):98–107. 12. Li JCH, et al. The challenges of providing eye care for adults with intellectual disabilities. Clinical and Experimental Optometry. 2015 Sep;98(5):420–9. doi: 10.1111/cxo.12304. 13. Pirogov DG, Malikova TV, Averin VA, Ivanova TV. [Psycholgical Defense and Coping Among Parents Raising Children with ICP (Part 2)]. Vestnik YUUrGU Seriya Psihologiya [Bulletin of the South Ural State University, Series Psychology]. 2014;7(1):68-76. URL: https://cyberleninka.ru/article/n/ psihologicheskie-zaschity-i-kopingi-roditeley-vospityvayuschih-detey-sdetskim-tserebralnym-paralichom-chast-2 (access date 26.03.2018). 14. Hayes SA, Watson SL. The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. J Autism Dev Disorder. 2013 Mar;43(3):629–42. doi: 10.1007/s10803-012-1604-y. 15. Butova TG, et al. [Service and quality of medical services]. Servisy v Rossii I zarubezhom [Services in Russia and abroad]. 2014;8(55):3 12. URL: https://cyberleninka.ru/article/n/servis-i-kachestvo-meditsinskihuslug (access date: 03.05.2018). Russian. 16. Mikhalchenko DV, Firsova IV. [Medical service at institutions of various forms of ownership].Saratovskiy Nauchno-Meditsinskiy Zhurnal [Saratov Journal of Medical Scientific Research]. 2012;8(1):28–31.URL: https://cyberleninka.ru/article/n/regionalnye-osobennosti-potrebleniyameditsinskih-uslug-v-uchrezhdeniyah-razlichnyh-form-sobstvennosti (access date: 03.05.2018). Russian. 17. Starshinova AV, Gogoleva YeA. [Health care access for disabled children as a social issue: the sociological analysis]. Sovremenniye problemy nauki i obrazovaniya [Modern problems of science and education]. 2015;2(2). URL: http://www.science-education.ru/ru article/view?id=21838 (access date: 04.05.2018). Russian. 18. Autism and Health: Advances in Understanding and Treating the Health Conditions that Frequently Accompany Autism. 2017; 35 p. URL: https://www.autismspeaks.org/sites/default/files/docs/facts_and_ figures_report_final_v3.pdf (access date 26.03.2018). 19. Portnova AA, Trushchelev SA, Serebrovskaya OV, et al. [Disability of children with mental disorders in Moscow]. Rossiiskii psikhiatricheskii zhurnal [Russian Journal of Psychiatry]. 2018;(2):4–9. Russian. 20. Thompson DG, Tielsch-Goddard A. Improving management of patients with autism spectrum disorder having scheduled surgery: Optimizing practice. J Pediatr Heal Care. 2014;28(5):394–403. DOI 10.1016/j.pedhc.2013.09.007 PMID 24287372. 21. Cavalari RNS, DuBard M, Luiselli JK, Birtwell K. Teaching an adolescent with autism and intellectual disability to tolerate routine medical examination: Effects of a behavioral compliance training package. Clin Pract Pediatr Psychol. 2013;1(2):121–8. doi 10.1037/cpp0000013. 22. AlHumaid J, Tesini D, Finkelman M, Loo CY. Effectiveness of the D-TERMINED Program of Repetitive Tasking for Children with Autism Spectrum Disorder. J Dent Child (Chic). 2016;83(1):16–21. PMID 27098716.



DOI: http://dx.doi.org/10.24411/1560-957X-2018-1%25x

Метрики статей

Загрузка метрик ...

Metrics powered by PLOS ALM